It’s funny. I expect that many, many people think that having people coming in to do things for you every day must be really nice. Some may even be willing to pay quite a lot of money for the privilege. But, for a disabled person who has to rely on carers for everything it’s not always that good. I hate it.

I don’t want to sound ungrateful but having carers, personal assistants or PAs as I prefer to call them, is not the barrel of laughs you might think it is. Sometimes you just want them to all go away and leave you alone.

I don’t know about other disabled people but I seem to spend three quarters of my life explaining the same thing to the same person over and over again.

You want a cup of coffee? Even though your PA has made you coffee every morning for…

Don’t criticize me for my dance

with God, who brings me confidence.

He lifts my mind up from despair

because I know He’s everywhere.

The Father’s lavish love implants

my heart with kindness in advance

of meeting strangers unaware,

because I know He’s everywhere.

Through Jesus, grace shows evidence

of living water when dispensed

without condition, freely shared

because I know He’s everywhere.

The Spirit helps my faith advance,

in trust, and bloom, mature-enhance

the way I see; become aware

because I know He’s everywhere.

In gentle arms, I take a chance

to follow Him in this deep dance,

and heart to heart I sigh in prayer

because I know He’s everywhere.