To honor

NOT MY SECRET...My story...My truth

When I was first diagnosed with a muscle disease 11 years ago, a friend of mine said, “I’m sure if you really needed to use your legs you could.” She was wrong. Sometimes words are empty. What we really should be doing is being respectful, honoring the person’s emotions that is going through a life changing event in their life.

At that time I used my scooter and wheelchair to do almost everything. If I did too much I could not move for days.

A few years ago I started my own plan. I was told no PT would help me. I was diagnosed with Central Core Disease because of the core formations in my type 1 muscle fibers. After being studied by doctors all over the world it was decided that WHATEVER I have it does not fit the typical Central Core Disease criteria. They tested my blood for…

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